Don't count the days, make the days count.
Thursday, March 31, 2016
Typing a letter to email to a Maine Legislature
My Thursday morning began at 8:00 a.m. by going out into the kitchen so as to drink my hot cocoa while eating some fruit. I then called my grandmother to see how her morning was going. I then toasted myself a muffin to go along with my bowl of cereal. Once I had finished eating I had returned to my bedroom at 8:45 so as to brush my teeth and shave before exercising. I had spent thirty minutes cycling before stretching. I then folded some laundry. I then put a load in the dryer before starting another load. At 9:40 I then put laundry away before making my bed. At 9:55 I then called WestSide to get a telephone number of a legislature I have to call about my transportation. Once I had typed my letter, I then tried to send it. Wouldn't you know it would not send. At 11:20 I then went back to the laundry room so as to fold some more laundry. I then another load in the dryer before starting another wash. At 12:00 I then sat down to watch the news in my bedroom. At 12:20 I then returned to the laundry room to fold some laundry. I then put my last load in the dryer before putting the laundry I had just folded away. At 12:30 I then lied down to rest. I had slept until 3:00 before getting up. I then went into the kitchen so as to engage myself in conversation with my parents for a brief moment I then spoke to a friend on the telephone. At 4:25 I then sat down to eat my salad. At 4:40 I then took a shower. After doing so, I had put some clean laundry away before sitting down to eat dinner. At 5:25 I then called my grandmother before pulling up my blog, so as to enter today's post.
Wednesday, March 30, 2016
Cleaning glassed during Brain Injury Education Group
My Wednesday morning began at 6:30 a.m. by going out into the kitchen so as to drink my hot cocoa while eating some fruit. I then had a bowl of cereal with a toasted english muffin. Once I had finished eating, I then returned to my bedroom so as to brush my teeth and shave before starting my workout. At 7:00 I then worked my upper body using my weights. I then strapped on my ankle weights so as to work my legs. Once I had finished, I then took my shower, thus getting ready to go to therapy. At 7:40 I then called my grandmother before sitting down to wait for my ride. Upon my arrival I had put my things into my locker before my nursing session with Brenda at 10:30. Breda had first taken my blood pressure. 130 over 90. She would like my to let Mass. General know that my diostolic has been 90 or above consistently. At 11:00 I then went to Brain Injury Education Group. Today Michelle and Deb had us first clean the glasses in which we use for visual simulation. We then laminated papers so as to use when explaining activities. I then worked on cleaning the mirrors, While other clients worked on there personal story. At 12:00 I had eaten my lunch, before taking a shower. I then attended support group from 1:00-2:00. I then left for home. I had arrived home at 3:15, thus going strait to bed. I had slept until 5:00 before getting up to eat dinner. I then called my grandmother at 6:20 before pulling up my blog.
Tuesday, March 29, 2016
Working on pics with Tobie to put in my book
My Tuesday morning began at 5:30 a.m. by getting up to stretch. I then preceded with my upper weight exercises. At 6:00 a.m. I then took my shower thus getting ready for the day ahead. At 6:30 I then went into the kitchen so as to eat some fruit. I then had my bowl of cereal with toast. I then brushed my teeth before leaving to go to therapy. Upon my arrival for 9:00 a.m. I had brought my things to my locker before my counseling session with Brad. We first spoke about my upcoming Appointment with the Neurologist at Mass General. We then did a mindfulness practice. At 10:00 I then met Liz in the gym for my P.T. session. She first had me riding the Nu Step. After fifteen minutes and .77 miles I was then in the parallel bars doing single leg stands. I then did single leg squats using the bosu ball. At 11:00 I had gone to the craft room for expressive arts group. Michelle and Casey first had us identify what materials we will need. We then collected materials for the project. At 12:00 I then went to the kitchen so as to eat my lunch. I then took a shower before meeting with Deb at 12:30. During this time Deb and I made pudding so as to help up with the special event tonight. At 1:00 I then went to the conference room for literature group. Today Laura had us review last week then we picked up reading. We then have to research books to read that might have a movie about the book. At 2:00 during recreational therapy, Tobie helped me with putting pictures in my book. At 3:00 I then went to the dining area for the special event. We had soaked toweles in vinegar, then adding color to them. At 5:00 we then had mac-n-cheese with mixed vegetables for dinner with pudding for dessert. I had arrived home at 7:18 thus typing my blog before going to bed.
Monday, March 28, 2016
A Drs. appointment with Dr. Kenny
My Monday morning began at 6:30 a.m. by getting up to take my shower thus getting ready for the day ahead. Once I was ready, I then went out into the kitchen so as to dunk some toast into my hot cocoa while enjoying some fruit for breakfast. Once I had finished eating, I then returned to my bedroom so as to brush my teeth. My father then drove me to Waterville for a doctors appointment. My appointment with Dr. Kenny went very well. After he had given me a clean bill of health, my father and I then went home. We had arrived home at 11:00. Once inside and back in my bedroom I had put my workout clothing on and began to stretch. After doing so, I then did my weight exercises. At 11:40 I then sat down to fill my pill containers for the week ahead. Then feeling tired, I then lied down to rest at 11:50. In doing so, I slept until 3:40 before putting my feet back on the floor. I then went into the kitchen so as to have dinner with my parents. After enjoying a nice delicious meal, I then took a shower so as to help get me comfortable for the night. I then pulled up my blog and began to type away of my day.
Sunday, March 27, 2016
"Happy Easter"
My Sunday morning began at 8:00 a.m. by getting up to watch mass on television. I then stretched before eating breakfast. Once I had taken a shower, My mother had taken me to the Pierce house so that I could visit my grandmother while she went to church. Once in my grandmothers room she had initiated the idea by asking, "Troy would you like to play cribbage?" I never turn down a challenge. Grandma was certainly on her A game today. Not missing a move. After three games my mother had arrived with our communion. I then said good-bye to grandma. My mother then took me to the shop so that my father could give me a haircut. At 12:15 my father and I left for home, picking up a bite to eat along the way. We then stopped at Mt. Blue drug so as to pick up a jar of vitamin B-2 Riboflavin. I take these to help with my headaches. At 12:45 we had arrived home. Once I had eaten my lunch, I then brushed my teeth before laying down to rest. I had slept from 1:10-4:00 before getting up. I then spoke to my friend Greg before pulling up my blog. After doing so, I then ate Easter Dinner.
Saturday, March 26, 2016
Talking to my friend Tim about visual frustration
My Saturday morning began at 10:00 a.m. I had gone out into the kitchen so as to drink my hot cooa while eating some fruit. At 10:30 I then had some eggs and toast with a couple of strips of bacon. Once I had finished eating, I then returned to my bedroom so as to brush my teeth. After doing so, I had called my grandmother. At 11:00 I then began to stretch. After doing so, I then preceded with my weight workout. Arms and legs. At 11:52 I had spoken to my friend Tim who is blind. He and I have allot in common when it comes to frustrations with Visual loss. Once off the phone with Tim, I then lied down to rest. I had slept from 12:30-3:40 After a well needed rest, I had then Eaten dinner before taking a shower. I then pulled up my blog and began to type.
Friday, March 25, 2016
Talking to my sister about getting a hotel room on our next trip to Mass General
My Friday morning began at 8:00 a.m. by taking the sheets off my bed and bringing my dirty laundry to the laundry room. I then began my first load of wash. At 8:15 I then I had returned to the kitchen so as to drink my hot cocoa while eating some fruit. At 8:20 I then toasted myself two slices of bread. I then made myself a banana sandwich with peanut butter. Once I had finished eating, I had brushed my teeth. At 8:50 I then returned to the laundry room to put the laundry in the dryer before starting another wash. At 8:55 I then road the stationary bike. At 9:20 I then made my bed before calling my grandmother. At 9:45 i then started another load of laundry before hanging the load washed. I then returned to my bedroom to stretch. At 10:00 I then began my upper weight exercises. I then spoke to my sister on the phone. She was looking for our mother who was at work at the time. She was wondering about getting a room out next trip to Mass. General. I then continued with my weight exercises. At 10:06 I then put a load of laundry in the dryer before starting another load. I then folded the laundry that was already dry, then put it away. At 10:30 I then filled my pill containers for the week ahead. At 10:45 I had strapped on my ankle weights and began to work my legs. I then spoke to a friend on the phone before handing my sheets to dry. At 11:40 I then folded some dry laundry before putting it away. After doing so, I had made myself a sandwich. At 12:00 I had brushed my teeth before laying down to rest. I had slept until 3:30 before getting up. I then called my grandmother before talking to a friend. At 4:45 I then took a shower before eating dinner. I then pulled up my blog and began to type.
Thursday, March 24, 2016
A restful day
My Thursday morning began at 10:00 a.m. by going out into the kitchen so as to drink my hot cocoa while eating some fruit. I then toasted some banana bread. Once I had finished eating, I then returned to my bedroom so as to brush my teeth and shave. At 10:53 I then called my grandmother. At 11:00 I then went out into the kitchen so as to make some ice. I then returned to my bedroom so as to stretch. At 11:30 I then went back to bed and slept until 3:00. I then got up and went into the kitchen to my dinner. At 3:22 I then called grandma. I then took my shower before sitting down to blog.
Wednesday, March 23, 2016
Setting up presentations during B.I.E. Group
My Wednesday morning began at 6:00 a.m. By going out into the kitchen so as to drink my hot cocao while eating some fruit. I then had a bowl of cereal with a toasted muffin. At 6:30 I then took my shower Thus getting ready for the day ahead. I was unable to exercise do to a bad nights sleep. At 6:45 I then brushed my teeth before sitting down to wait for my ride. I was able to catch a little sleep while waiting. My ride showed up at 9:15. Upon my arrival to WestSide, I had put my things into my locker before meeting with the Nurse. I had mentioned to Brenda the date of my next appointment at Mass. General. We then discussed the medication the doctor had taken me off and what I am now taking. Brenda then took my blood pressure, 120 over 90. At 11:00 I then went to the conference room for Brain Injury Education Group. Today we had set up three presentations out in the community. One on May 6 in Mexico Diversity days. The next one at the University at Southern Maine in front of some Theraputic Rec students. The next on June 20 in front of the Scrub Club at Franklin Memorial Hospital. We then went over one handed activities. We then laminated the explanation. T 12:00 I then took my shower before eating lunch. At 1:00 during support group, we spoke about our week with Brad and Deb. I had arrived home at 3:15, thus going strait to bed. I had slept until 5:30 before getting up to eat dinner. I then returned to my bedroom so as to blog at 5:50. I was scheduled to attend an event at Westside tonight, but was not feeling all that well. I am glad I came home.
Tuesday, March 22, 2016
Finishing my easter wreath
My Tuesday morning began at 5:00 a.m. by getting up to stretch. After doing so, I then shaved. At 5:42 I then began to work my upper body with weights. At 5:50 I then took my shower, thus getting ready for the day ahead. Once I was ready, I had gone out into the kitchen so as to eat my fruit while drinking my hot cocoa. I then had a bowl of hot cereal with with half of a toasted muffin. I then grabbed my things and Dan took me to WestSide. I had arrived there for 8:45. Once I had put my things into my locker I had gone back to the lobby to wait. It was snow day yesterday so I had asked if I could meet with Piper. Once my case management session was done, I then met with Brad. Today we first discussed my doctors appointment in Boston before doing a mindfulness practice. At 10:00 I then went to the gym for my P.T. session with Liz. I first rode the new step for thirty minutes. She then had me standing on the bosu ball working on my balance. She first had me doing squats with legs hip width apart. She then had me doing single leg stands on the bosu. Once the workout was complete, Liz had me stretch. At 11:00 I then went to the arts and crafts room for expressive arts. Today we completed our easter wreaths by stuffing fake grass in between the eggs. At 12:00 I then went to the dining area so as to eat my lunch. I then took a shower before meeting with Deb for my support session. We talked about my doctors appointment in Boston. Everyone was commenting on how good I looked today now that I am off the medication I was recently put on. I must me allergic. It always made me feel like vomiting twelve hours after taking it. At 1:00 I then went to the conference room for Literature group. Today Laura had us taking turns reading and discussing the book we are now reading. At 2:00 During my recreational therapy session with Tobie, she and I looked up pictures to put in my book. At 3:00 During creative writing group Laura first had us free write. We then each drew four pieces of paper with words on them. We then had to write using the four words in our writing. I then grabbed my things at 4:00 then Dan took me home. I had arrived home at 5:12 thus getting comfortable before sitting down to eat dinner. I then pulled up my blog.
Monday, March 21, 2016
Calling to have my internet fixed
My Monday morning began at 10:00 a.m. by going out into the kitchen so as to drink my hot cocoa while eating some fruit. After doing so I then had some french toast. At 10:22 I then returned to my bedroom so as to brush my teeth. After doing so I had called my grandmother to see how her morning was going thus far. Once off the telephone I then began to stretch. Once I had completed my stretching routine, I then began to work my upper body with weights. At 11:00 I then began to do my ankle exercises. At 11:08 I then shaved. At 11:17 I then did my back stretching before strapping on my ankle weights so as to work my legs. At 11:44 I then sat down to fill my pill containers. At 12:00 I then watched the news while eating a bowl of soup. At 12:50 I then brushed my teeth before laying down to rest. I had slept from 1:00-4:00 before getting up. I then took a shower before calling to have my internet fixed. I then pulled up my blog and began to type.
Sunday, March 20, 2016
Visiting my grandmother while my mother was a church
My Sunday morning began at 8:00 a.m. by watching Sunday Mass on television. The mass ended at 9:15, I then made my way into the kitchen so as to eat some fruit and to drink my hot cocoa. At 9:40 I had stretched before taking my shower and getting ready for the day ahead. After doing so, I had gone back out into the kitchen for an egg sandwich for breakfast. I then returned to my bedroom at 10:10 so as to brush my teeth and then call my grandmother. I then thought, seems that I was ready, I had my mother drop me off to visit my grandmother while she was at church. so that I did. My grandmother and I had a great visit today. After mass, my mother had come back to the Pierce House to give my grandmother and I communion. My mother and I then went home. After a small bite to eat, I had brushed my teeth before laying down to rest. I had slept from 12:30-3:30. I then read the paper. At 4:00 I had spoke to a friend before eating a bowl of soup for dinner. I then called my grandmother at 5:30 before pulling up my blog.
Saturday, March 19, 2016
A visit with my friend Jim
My Saturday morning began at 9:18 a.m. by going out into the kitchen so as to eat some fruit while drinking my hot cocoa. After doing so, I then had some waffles for breakfast. Once I had finished eating, I had brushed my teeth. At 10:00 I then began to exercises. I had first stretched and did my ankle exercises. After doing so I had taken a break at 11:00. I had visited with my friend Jim briefly who stopped by. At 11:35 I then lied down to rest. I had slept until 2:35 before getting up. I had gone into the kitchen to eat my lunch. After brushing my teeth, I then had a bowl of popcorn while playing words with friends. At 3:40 I then filled out an easter card to send to my grandmother. I then continued to play words with friends until 4:30. This is when I pulled up my blog and began to type.
Friday, March 18, 2016
Talking to my cousin Judy about my Neurologist at Mass General
My Friday morning began at 9:00 a.m. by going out into the kitchen so as to drink my hot cocoa while eating some fruit. At 9:30 I then toasted myself half a muffin to go along with my bowl of cereal. Once I had finished eating, I then called my grandmother to see how her morning was going thus far. I then brushed my teeth after a ten minute conversation. At 9:55 I then began to stretch. After doing so, I then preceded with my weight exercises. first my upper body, I then strapped my ankle weights on thus work my legs. At 10:23 My case manager from West Side had called. Piper wanted to know how my Doctors appointment went at Mass General with Dr. Maus. We spoke briefly, I then continued to workout with my leg exercises. At 10:45 I then sat down to relax as I spoke to a friend. At 11:40 I then went into the kitchen so as to eat my lunch. At 12:00 I then brushed my teeth before laying down to rest. At 2:00 I had spoke to my cousin Judy on the telephone. She had been keeping up on my Journey and wondering how Dr. Maus was for a Doctor. She had read about him on line and had given me some tips on how to go about approaching him. It some times can be intimidating and scary when talking to a new doctor for the first time, but I think like others, I will learn how to deal with Dr. Maus. It is just very hard to think on the spot. If I only had a way to plan my conversations with him, but what will he say next? I do not know. It is like any knew situation you encounter, Preparation is very difficult, especially when a situation is your own. At 2:40 I then received a telephone call from the pharmacy about a medication I had been taking for my headaches. I had told then to discontinue it. It involved an extreme amount of caffeine and had been making sick after taking it. It was doing wonders for my headache, But I had felt like vomiting until the dose wore off. At 2:50 I then filled up my pill containers for the week ahead. At 3:00 I then had taken my shower before speaking to a friend on the telephone. At 4:30 I had finished watching a movie before pulling my blog up at 5:00.
Thursday, March 17, 2016
Happy St. Patricks Day
My Thursday morning began at 10:30 a.m. by calling my mother at work. She had left me a note to do so once I was awake. She wanted to know if I would like to go spend some time at the Pierce House visiting my grandmother. At 10:40 I then started a load of laundry. At 10:50 I then had some fruit while drinking my hot cocoa. After a bowl of cereal and half of an english muffin, I then picked up the kitchen. At 11:10 I had returned to my bedroom so as to brush my teeth then make my bed. At 11:25 I then began to stretch. After doing so, I then put a load of laundry in the dryer. At 11:37 I then continued to stretch. At 11:50 I then did my weight exercises with my upper body. At 12:00 I then put some laundry away before taking a shower. Once I was ready, I had folded some laundry in the dryer and put it away. At 1:15 My mother had taken me to the Pierce House so that I could vist my grandmother. I had arrived at 1:25. At thirty-five minutes my mother had stop by to pick me up. It is a good thing to. They were having a st. Patricks Day celebrations. The noise from the bag pipes would have given me a seizure for sure. I had arrived home at 2:30. Once I had eaten my lunch, I spoke to a friend on the phone before sitting down to type my blog.
Wednesday, March 16, 2016
Appointment at Mass. General With Dr. Maus
My Wednesday morning began at 5:00 a.m. at my sisters in Scarborough by getting up to go into the kitchen so as to drink my hot cocoa and eat some fruit. I then had an egg sandwich. At 5:40 I then took my shower thus getting ready to go to my doctor's appointment at Mass. General with a Dr. Maus. We arrived at Mass. General at 9:00 a.m. I was soon taken into a room by a nurse who had taken my blood pressure 133 over 93. I then was was weighed 167 pounds. Once that was finished, I had shown the nurse my medication. At 10:05 I then went back into the waiting room to wait with my mother and sister. At 11:00 my mother, sister, and I met with Dr. Maus. We discussed what might be causing me to have seizures that is if in fact what I am experiencing is really seizures. After talking to the Doctor, I then agreed to having a test done at Mass. General in the weeks to come. What will happen is that I will be admitted into the hospital and taken off all my seizure medication. I will then be monitored to see how it takes before I have a seizure. When I do feel an aura coming on I will ring the bell to have someone in the room before the full blown seizure kicks in. There is no set time that I will be there. Just up until I have a seizure. Then the doctor can determine what medication to put me on. If I do not have any seizure activity, He said I would be taken off what seizure medication I am on for good. Will see how it goes. At 11:50 My mother, sister, and I left Mass. General. We arrived back at my sisters in Scarborough, Maine at 1:45. After eating lunch, my mother and I left for home. We arrived back home at 4:30. Once the car was unpacked, and my things were put away, I then pulled up my blog and began to type.
Tuesday, March 15, 2016
Making the trip to my sister's
My Tuesday morning began at 8:15 a.m. By taking the sheets off of my bed. After doing so, I then shaved. At 8:30 I then went into the kitchen to have a cup of cocoa with some fruit. I then had dropped egg on toast. At 9:00 I then brushed my teeth before sitting down to fill up my pill containers to bring to Mass General to show the Neurologist. At 9:15 I then took the sheets off my bed thus putting clean ones on. After doing so, I then called my grandmother. After a brief chit chat I then began to stretch. I then preceded with my upper and lower weight workout. At 10:00 I then packed my medication to bring with me to show the doctor at Mass. General. At 10:22 I then received a phone called from Fair Point asking me if my internet was working o.k. At 10:40 I then took my shower thus getting ready for the day. At 11:30 I then packed up the car and soon was on the road with mother to spend the night at my sisters before going to the doctors tomorrow. Along the way I had picked up some lunch. We then made a stop at Franklin Memorial Hospital to pick up cartridge with the M.R.I. Records on them. We then soon arrived at my sisters at 2:45. Once inside, I had unpacked before looking at colors in which I can paint my camp. I then spoke to my grandmother before pulling up my blog.
Monday, March 14, 2016
Calf stretches
My Monday morning began at 5:30 a.m. by getting up to stretch and to work my upper body. After doing so I had taken my shower before going out into the kitchen so as to eat breakfast. I then grabbed my lunch and knapsack and United wheelchair was at my doorstep at 7:00 a.m. I had arrived at WestSide for 8:30 a.m. I had taken my lunch and clothing to my locker. I then sat down to wait for my first therapy in piece before making my way to the conference room. I was the only client to show today for the last poetry group, so I had asked Carina if she and I could look up information to do with my new neurologist that I will be seeing this week down at Mass. General. After doing so, I had met Liz in the gym at 11:00 for my P.T. session. Today I had firat rode the olyptical for seventeen minutes. I then rested before doing some standing exercises on the bosu trainer. After ten squats and calf stretching, I had gone to the kitchen so as to eat my lunch at noon. After doing so, I had taken a shower before Before meeting with Susan for a speech therapy session. Today we played the last word. I then went home. I had arrived home at 3:15 thus going to bed. I slept until 5:00 before getting up to eat dinner. I then called grandma before pulling up my blog.
Sunday, March 13, 2016
Packing for my Doctor's appointment
I began my Sunday morning at 8:00 a.m. by watching Sunday Mass on television. Still unable to go to mass do to the noise setting off aura's or even a seizure. At 9:00 I then went into the kitchen so as to eat some fruit while drinking some hot cocoa. I then had some muffins with my sister. At 8:25 I then brushed my teeth and shaved before calling my grandmother. At 9:50 I then began to stretch. At 10:15 I then started the dishwasher At 10:23 I then put some clean laundry away. At 10:30 I then organized a drawer filled with clothing. At 11:20 I then filled my pill containers and packed to go to Boston for my neurology appointment on Wednesday. At 12:30 I then had lunch. At 1:00 I had finished packing, before laying down to rest at 1:15. I had slept until 4:00 before getting up to read the Sunday paper. I then took a shower before eating dinner. At 5:30 I then called grandma before pulling up my blog.
Saturday, March 12, 2016
Taking it easy
My Saturday morning began at 6:00 a.m. by sending out some emails. I then took my seizure medication before falling back to sleep. At 9:30 I then woke up, thus going out into the kitchen so as to eat some fruit and drink my hot cocoa. After doing so, I then had waffles for breakfast. At 10:10 I then brushed my teeth and shaved before making my bed. I then began to stretch. I did so for twenty minutes before taking something for my headache and going back to bed. Before laying down, I first had called my grandmother. At 3:15 I then got up and made myself some lunch. I then played words with friends til 4:30. I then got up to take my shower before sitting down to blog.
Friday, March 11, 2016
M.R.I. Testing Once step closer to going to Mass General
Thursday March 10 2016 Calling tech support
My Thursday morning began at 8:00 a.m. by going out into the kitchen so as to have some fruit while drinking my hot cocoa. I then fixed myself a bowl of cereal with a toasted muffin. At 8:30 I then brushed my teeth and shaved before going to the laundry room so as to fold some laundry. I then put a load in the dryer. At 9:30 I then called my grandmother. We spoke briefly, I then called my mother at work. At 10:20 I then began to stretch. I then preceded to work my upper body with weights. At 11:00 I then watched a movie. Before going into the kitchen at 12:00 to french toast myself some muffins for lunch. Once I had brushed my teeth, I had lied down to rest at 12:30 and slept until 2:30. I then sent out a couple of emails before calling a friend to chat. At 4:30 I then ate dinner. After doing so, I had taken a shower. I then called my grandmother before calling tech support to get my internet up and running again.
Friday March 11 2016 going for an M.R.I.
My Friday morning AT 8:00 A.M. by going out into the kitchen to drink my cocoa while eating some fruit. I then had a bowl of hot cereal with a toasted muffin. At 8:30 I then spoke to my grandmother before picking up the kitchen and starting the dishwasher. I then went to the laundry room to start a load of laundry. At 8:40 I then brushed my teeth and shaved before making my bed. I then began to stretch. At 9:30 my vision began to blur from the medication I am on for my seizures. Anxious for that appointment in Boston this coming Wednesday. I then hung some laundry to dry before preceding with my upper weight workout. Once my workout was complete, I had eaten lunch. I then brushed my teeth before emptying the dish washer. I then took a shower thus getting ready to go have an M.R.I. Man those machines are noisy. I am surprised I did not have a seizure while having the M.R.I. At 1:30 My mother had picked me up once she was out of work and took me over to the hospital. Once I was there, they had put me in a wheel chair and brought me to the trailer where the M.R.I. was. I soon found myself listening to sorts of weird noises, what a racket. The test was finished at 2:30 and we were soon on our way home. Upon my arrival home I had slipped into something comfortable and lied down to rest from 3:09-5:00. I then ate dinner, called grandma, then pulled up my blog.
Wednesday, March 9, 2016
Talking to Brenda about my Dr. appointment and headache
My Wednesday morning began at 6:00 a.m. by going out into the kitchen so as to drink my hot cocoa while eating some fruit. I then had a bowl of hot cereal with a piece of toast. Once I had finished eating, I had taken my shower, thus getting ready to go to therapy. Not feeling all that well do to the new medication I am taking before I go to bed, I once again skipped out on my workout. At 8:00 I then called the hospital so as to answer questions before receiving my M.R.I. This has to be done in the town in which I live so as to bring with me the day of my appointment. I then called my grandmother before leaving. Upon my arrival to WestSide I had put my lunch and clothing in my locker before before going to the nurses office to meet with Brenda. I was going over some of the medication I have with Breda today, She had given me some good advise on what to do for my headaches instead of taking the pills with caffeine in it. They are helping my headaches, but the side effects are something else. She suggested tylonol. At 11:00 I then went to the conference room Brain Injury Education Group. Today Michelle talked about a presentation we can sign up for about a snow boarder who had a brain injury. There will be healthy snacks also served. We also discussed of an upcoming presentation to be geven at a near by college. We then were asked who was interested. I am always interested in participation in theses types of events, but not is not the right time for me to be doing anything but trying to get better from the seizures and head pain I have ben having. At 12:00 I then went to the dining area so as to eat my lunch. After doing so, I had taken a shower before going back to the conference room for support group. Once we had finished sharing, I then met with Susan for speech. During our session, she began by letting me know she had taken another position some where else to work. She and I then showed me how to use the dragon dictation apt on my I pad. At 3:00 I then went home. Upon my arrival home I had put on something more comfortable before eating dinner. I then called my grandmother before pulling up my blog. I then began to rest my head for the night.
Tuesday, March 8, 2016
Making an easter wreath
My Tuesday morning began at 5:30 a.m. by going out into the kitchen so as to drink my hot cocoa while eating some fruit. After doing so, I then had a bowl of hot cereal with a muffin. At 6:00 I then brushed my teeth and showered. I had not exercised today do to a headache. I then took a med for my headache. I then gathered my things to wait for my ride. Upon my arrival I had put my things into my locker, then went to the lobby to wait. At 9:15 I then had my counseling session with Brad. Today Brad and I discussed my upcoming appointment in Boston at Mass General. We also discussed my last appointment with my Neurologist now. At 10:00 I then met Liz in the gym for my p.t. session. Today I was not feeling all that well today so we had gone for a walk outside. The fresh air felt good. After walking to the animal shelter and back .08 miles we then practiced walking up and down stairs. At 11:00 I then went to the craft room for expressive arts. Today we had made and easter project. glueing eggs to a cardboard circle so as to make an easter wreath. I then had my lunch while waiting for my ride. I had gone home early do to not feeling all that well. I had an aura yesterday and today I was fighting a very bad headache. I had arrived home at 2:57 thus going strait to bed. I had slept until 5:30 before eating dinner. I then called grandma before pulling up my blog.
Monday, March 7, 2016
Calling Mass. General
My Monday morning began at 8:00 a.m. by drinking my cocoa and eating some fruit. I then had half a muffin. Not feeling all that well after yesterday's aura I had. At 8:30 I then brushed my teeth before going back to bed. I had a doctors appointment to go to, but I had to cancel. I had called my grandmother before resting. I did so until 11:30. I then had some lunch. I then brushed my teeth before filling my pill containers for the week. At 12:30 I then spoke to a friend. I then went back to bed at 12:50 and slept until 3:00. Once I was up I had called Mass. General to register for my appointment to see a Neurologist. Hopint something can be done about these seizures/auras I keep having. After taking a shower I had eaten dinner before calling it a day.
Sunday, March 6, 2016
Sick
My Sunday morning began at 8:00 a.m. by watching mass on t.v. I then went into the kitchen to have an egg sandwich with home fries. Once I had eaten I had taken a pill for my headache. Once I brushed my teeth I then went back to bed. I slept from 10-1:30 before getting up to eat lunch. I then spoke to a friend on the phone. At 3:00 I then spoke to my sister. I then lied down to rest at 2:00 until 4:00. I then had a bowl of soup at 5:30 before calling it a day.
Saturday, March 5, 2016
A restful day
My Saturday morning began at 9:30 a.m. as usualy by drinking my cocoa while eating some fruit. At 10:00 I then returned to my bedroom so as to make my bed. After doing so I had stretched before going back out into the kitchen so as to have some banana muffins for breakfast. At 10:47 I then returned to my bedroom so as to brush my teeth. After doing so, I began my upper body workout. At 11:45 I then began to feel tired and found myself back in bed sleeping until 3:35. Once I was up, I had spoken to my grandmother before eating dinner. At 4:10 I then had taken my shower. I am so anxious for my appointment in Bosten at mass general with a doctor so as to get my medication corrected, so that I can start feeling, BETTER!!!
Friday, March 4, 2016
A visti with Grandma
My Friday morning began at 8:00 a.m. by going out into the kitchen so as to drink my hot cocoa while eating some fruit. I had a bowl of hot cereal. Once I had finished eating, I had returned to my bedroom so as to brush my teeth and shave before making my bed. At 9:15 I then called my mother at work. She had let me know that she would be picking me up at 1:00 to take my to my grandmothers so that I could spend some time with her. I then went downstairs to ride for twenty minutes. After doing so, I had returned to my bedroom at 9:40 so as to do my upper body workout. After doing so I then stretched. At 10:25 I then strapped on my ankle weights and began to do my leg exercises. Once I had finished my workout, I then put my clean laundry away. At 10:45 I then lied down to rest. I had slept until 12:15 before getting up to take a shower. At 12:30 I then ate lunch before brushing my teeth. At 1:10 I then went to the Pierce House to visit my grandmother. I had stayed there for an hour while my mother went grocery shopping. she then picked me up to take me home. I arrived home at 3:00, thus getting comfortable before sitting down to blog.
Thursday, March 3, 2016
Making the move to Mass. General to see a Doctor about my seizures
Tuesday 3/1/16
My Tuesday morning began at 5:30 a.m. by getting up to eat my breakfast. After doing so, I had returned to my bedroom so as to stretch before taking my shower, thus getting ready to go to WestSide Neuroreheab for therapy. I then grabbed my lunch and knapsack and out the door I went. United Wheelchair had me there on doorstep at 9:00 a.m. I had a few minutes to spare, so I had put my lunch and clothing into my locker before meeting with Brad. I had seen Sally the Nurse walking in the halls as I was going to Brads office. We said, Hi, then continues on. I then met with Brad. He had began by saying not to worry about my I pad giving me seizures. Brad and I then spoke about my seizure activity before my doctors appointment tomorrow. At 10:00 I then had an aura, wouldn't you know it. It soon cleared before meeting with Liz for my p.t. session. Today we worked on balance with the wii. At 11:00 During Espressive Arts Michelle and Casey had us finish our coloring project. At 12:00 I then went to the dining area so as to eat my lunch. I then took a shower before meeting with Deb at 12:30. During this time, I had continued painting the wooden letters that I will be putting in my new bunk house that I am having built over the winter months. It is bigger then the previous one I had been staying in. At 1:00 during literature group we talked about Luke and Sophia in the book we are reading. We were then given questions to answer over the material we had read getting the answers from the notes we had taken. At 2:00 during recreational therapy Deb had covered for Tobie, I had continued working on painting the wooden letters. At 3:00 during creative writing group Laura first had us start the group with a free write. for ten minutes. We then wrote to a visual prompt. At 4:00 United Wheelchair then took me home. I had arrived home at 5:15. Once I had eaten dinner, I then called my grandmother. I then pulled up my blog.
Wednesday 3/2/16 Trip to the neurologist
My Wednesday morning began at 7:00 a.m. by going out into the kitchen so as to drink my hot cocoa while eating some fruit. After doing so, I then had some blueberry pancakes. At 8:00 I then returned to my bedroom so as to brush my teeth then organize my medication. At 8:40 I then began to stretch. At 9:00 I then took my shower thus getting ready to go to the doctors. I then lied down to rest. At 11:30 I then got up to eat some lunch. I then brushed my teeth after doing so. I then sat down to wait while watching the news. At 12:30 my parents and I then left for my appointment. At 2:00 we had gone to the Christmas Tree Shop At 3:00 then to see Dr. Selvitelli. We had talked with her about my recent m.r.i. and seizures that I have been having. My sister had brought up the quality of life. We then mentioned seeing another doctor in Boston at Mass. General. Dr. Selvitelli will be doing some tests of her own then I will be see a doctor Silvitelle at Mass General who originally comes from Dartmouth on April 8th. In the mean time Dr. Silvitelli has adjusted my medication accordingly.We had set up the appointment before leaving. We had arrived home at 6:30. I then called my grandmother before going to bed. What a day!
Thursday 3/3/16 Internet is fixed
I began my Thursday morning at 5:00 a.m. by taking my medication then going back to sleep. I then got up at 8:00 so as to eat breakfast. At 8:30 Martin from Fair Point stopped by so as to fix my internet. At 9:00 I then started the dish washer. After doing so, I had folded some laundry that had dried. I then started a wash before sitting down to start typing my blog. At 10:40 I then hung the laundry to dry. At 11:00 I then continued to stretch. At 11:08 I had emptied the dishwasher. Once the dish's were put away, I then wrapped up with my stretching. At 11:35 I then began with my upper weight exercises. At 11:50 I then had a bowl of soup. I then washed my dish's before typing up my blog.
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