Don't count the days, make the days count.
Tuesday, May 31, 2016
Getting P.T. put back on my schedule
My Tuesday morning began at 5:00 a.m. by getting out of bed to shave. I then made my bed before starting to stretch. At 5:20 I then began to work my upper body with my weights. Once I had finished working out, I had then taken my shower thus getting ready for the day ahead. At 5:50 I had gone out into the kitchen so as to drink my hot cocoa while eating some fruit. I had then had a bowl of granola cereal with a toasted english muffin. Once I had finished eating, I had returned to my bedroom so as to brush my teeth. I then cleaned my bathroom before sitting down to read some of the paper. At 7:45 United Wheelchair had arrived to bring me to WestSide. Upon my arrival, I had put my things into my locker before meeting with Brad at 9:15 for counseling. We had spoke about my stay at Mass. General, which by the way I am glad is over. At 10:00 Jodi had filled in for Liz during my Exercise session. I had first did the lyptical for fifteen minutes. I then went in the parallel bars to work on balance. During my session Jodi and I talked about getting me back with P.T. again. When I left Mass General they had mentioned it to me, so I thought I would ask. She said she would speek to Piper my case manager. At 11:00 I then went to the art room for expressive arts. Today Michelle had us coloring because we are in between projects. We had just finished ou wind chymes, which we had taken home today. At 12:00 I then had taken a shower before eating my lunch. At 12:30 I then met with Deb. During our support session, I had shown Deb my book. At 1:00 during literature group Laura read answers to question we then took turns reading. At 2:00 during my recreational therapy time with Tobie we had starting working on a vision board. At 3:00 I then spoke to Piper about getting P.T. put back on my schedule. She has to a release from Dr. Mause at Mass. General before doing so, but it should not be a problem. At 3:00 I then went to the computer room fro creative writing. Laura first had us free write for fifteen minutes. We then did a writing prompt. At 4:00 I then went home. I had arrived home at 5:10, thus getting comfy before sitting down to eat dinner. I then pulled up my blog and began to type.
Monday, May 30, 2016
Happy Memorial Day
I began my Monday morning on this Memorial Day, at 8:30 a.m. by speaking to my sister on the phone. She had been connecting my computer up to the internet at camp and needed my pass code for my I pad. Once I had given it to her I then went out into the kitchen so as to drink my hot cocoa while eating some fruit. At 8:55 I had returned to my bedroom so as to make my bed. My sister had stopped by on her way home from camp to say good-bye. Once she was on her way, I then sat down to eat french toast for breakfast. At 9:35 I then had brushed my teeth before filling out a questionare sent by WestSide on the services I receive. At 10:00 I then worked on my book. I had gained information with my most recent stay in the hospital at Mass. General, which by the way I am glad is over. At 11:50 I then had some lunch before returning to my bedroom so as to brush my teeth. I then lied down to rest. I had slept from 12:23-3:30 before getting up. I then stretched and worked my upper body with weights. At 4:45 I then took a shower, thus getting comfortable for the evening. After doing so, I had eaten dinner. I then called my grandmother, before returning to my bedroom so as to enter my blog.
Sunday, May 29, 2016
My First Full Day "HOME" After Being Discharged From Maa. General
I began my Sunday morning, My full first day home from Mass. General by watching Sunday Mass on television. While drinking my hot cocoa. After doing so, I had stretched. I am still a little wobbly on my legs, like walking on toothpicks. I guess that is what happens when you lay in bed for a week. At 9:00 I then took a shower, thus getting ready to go visit my grandmother. After doing so, I had gone out into the kitchen so as to eat some fruit, before eating a toasted english muffin with peanut butter and honey. Once I had brushed my teeth, My mother then took me to vist my grandmother on her way to church. Upon my arrival to my grandmothers she and I played a couple of games of cribbage. After mass my mother gave my grandmother and I communion. I then went home with my mother. We had a arrived home at 12:10. I then had some lunch before brushing my teeth. Then still feeling exhausted from my week of being sleep deprived, I had lied down to rest and slept from 1:00-5:30. Once I was up, I had takne a shower before sitting down to blog. I then went to the kitchen to enjoy a nice plate of spaghetti.
Saturday, May 28, 2016
Home At Last
My Saturday morning began waking up for the first time in a week in my own bed. It was 9:00 a.m. I had spent the entire night a sleep. There were no bells, whistles, or even alarms to listen to, so as to let medical personal know that someone had a seizure. The entire nights sleep felt grand, after being sleep deprived most of my stay. I had first stepped foot onto my floor, was still a little unsteady for being off my feet for so long. I had used my cain for the day to help support the toothpick feel to the legs I walked on. After making my bed, I had gone out into the kitchen so as to have some fruit and drink my hot cocoa. I sure did miss the assortment of fruit that my mother puts together in the morning. At 9:30 I had then called my grandmother to speak to her for the first time in a week. After doing so I had given myself a good shave. I had a beard on me that took a while to shave. Being wrapped up in the goss I had around my entier head and partial face area, I do not know how anything could grow. At 9:55 I then went out into the kitchen so as to have eggs and toast for breakfast. At 12:20 I had then returned to my bedroom so as to brush my teeth, I then began to unpack what things I had left in my suitcase, that were already taken out and put in the dirty laundry. At 10:42 I then sat down to read some of the newspaper. After doing so, I had lied down to rest. At 1:40 I then got up and went out into the kitchen so as to eat my lunch. After doing so, I had pulled up my book on my computer and began to enter the latest turn of events with my recovery. i.e. Mass. General stay. At 3:00 I had spoke to my friend Greg before taking a shower for the first time which felt great after a weak of only being able to take sponge baths do to the wires that were attached to my head. Once I was nice a clean, I had called my grandmother before eating dinner. Ah, it is sure nice to be home.
Friday, May 27, 2016
Discharge day from Mass General !!!
As I sat in my hospital bed patiently waiting for my breakfast on this day that I was to be discharged, nurses had come into my room to take my vitals for the last time. As they were doing so my breakfast was brought to me. Before eating I had the electrodes taken off my head. Ahhhh that feels good. After being wrapped up like a mummy, my head can finally breath. Once my head was cleaned up. I then enjoyed my breakfast while talking to my sister who was there to bring me home today. Once I had finished eating, I then waited patiently to speak to the medical team about discharge. I then was released from my bed all alarms off. Once I was dressed and ready, I was set to enter into the outside world once again.
Thursday, May 26, 2016
Getting some good news from the doctor today.
My Thursday morning began at 3;00 a..m. By ending my sleep deprecation. I then went to sleep until 8:00. Once I was awake, I had eaten my breakfast. I then brushed my teeth before going back to sleep. At 8;46 the nurse gave me my injection in my stomach. At 9;00 i had washed up and put on clean pajamas before going back to bed. I had slept for two hours before my wrapping fixed electroids flushed at at 11;53 I then went back bed before lunch came. At 12:30 I began to est when the doctor walked into my room. She was there to let me know that I would be discharged tomorrow. More earlier the better she said. I then rested until 2:00 before my sister arrived. My sister had spoke to the nurse about discharge tomorrow. I then rested while visiting with my sister. At 5;00 I then ate my dinner before saying good-bye to my sister, until tomorrow.
Wednesday, May 25, 2016
Ending my sleep deprivation test at 3:00 a.m.
My Wednesday Morning began at be ending my sleep deprecation test art 3:00 a.m. This was so as to tire myself to the point of bringing on a siezure. I had an aura, does that count? I was then allowed To go sleep at 3:00 a.m. I was then awoken at 7:00 a.m. By an alarm. I was so tired, I had slept through the alarm. My nurse Alana had to wake me. I had eaten my breakfast while watching the news. At 8;45 Alana gave me an injection in my stomach due to lack of moving around. Shortly afterwards I had experienced an aura. Once I had taken my medication I had gone to bed. The bed rails went up and I went right to sleep. I had slept until 9:10 before brushing my teeth. I then rested a little before a person came in my room To inject liquid into the electrodes attatched to my head. At10:15 Drs. And interns came to my room to see how I was doing. I then had my room cleaned, before having my cardiac Leeds changed. At 11:40 I had bathed before eating my lunch. Once I had finished eating I had spoke to a doctor of my discharge date. Possibly Friday May 27. At !:00 My friend Tim had called. We spoke for twenty minutes, I then slept from 1:23-3;00. I then had my blood pressure and temperature taken. At 3:45 my father had called. I then spoke to my friend Greg who had called. At 4:30 I then typed my blog entree for th day before my meal was delivered to my room.
Tuesday, May 24, 2016
I will be sleep deprived tonight until 3:00 a.m.
My Tuesday morning began at 2:00 a.m. Talking to an intern. He wanted to know my history of brain injury. At 6:00 a.m. I then woke after off on sleep all night. I had watched the news before before filling out my menue for the day. At nurse Nikke arrived to get levels of seizure Ned's that I am on. At 8:06 I then ate my breakfast while sitting in a chair. At 8:30 I had brushed my teeth before returning to my chair. At 11:10 my mother had called. While talking to her the neurology came in to talk to me. While doing so they gave me an exam. They also let me know that they will be decreasing my medications starting tomorrow. At 11:30 I had bathed before lunch. At 12:07 I then ate. At 12:45 I then went back to bed. At 1:30 I had filled out forms thus making my mother Health care proxy.If I am unable to make decisions my mother will. At 1:44 Nikky put my bed down so that I could sleep. At 1:55 Dr. Maus then came in the room to see me and advised me not to sleep. He wants me steeped deprived so as to help cause a seizure. I am not allowed to go to sleep tonight until 3:00 a.m. Or should I say tomorrow morning. I am not allowed to take any more naps while I am here at Mass General Hospital. At 2:46 Sally called with Tim to talk. What a treat. I then went on face book to talk to my cousin Dawn until 3:21. At 4:30 I then played words with friends after watching a little t.v. At 5:00 I had spoken to my sister on face time. As I was doing so, I had experienced an aura.. With sick feeling to stomach, blurred vision, ect. At 5:30 I then had dinner. I then brushed my teeth before receiving a call from Deb. Another nice surprise. I then pulled up my blog and began to type.
Monday, May 23, 2016
Admissions day to mass general
My Monday morning began 8:00 a.m. At our friend Berry's eating a breakfast. At 8:40 I had then taken a shower thus getting ready for admissions into Mass Genereal. At 9:30 I had sat To wait. At 11:20 we had left to go to Mass GENERAL. WEARRIVRD AT11:20. I finally made it to May room at 12:30. Upon doing so I had met with my Nurse Nicky. My mother sister and I Sat in my room. At2:00 I began to get hooked up to the e.e.g. At 3:00 Nurse Nicky hooked me up to my heart monitor. We then went over what Medes I could take. At 3:10 I rested. At 4:15 I then filled out my menus for tomorrow. At 4:35 the doctor came in to let me know what was going on. I then waited for dinner.
Sunday, May 22, 2016
Trip to Mass General
My Sunday morning began at 7:00 a.m. By getting out of bed so as to workout. Once my stretching and weight exercises were finished, I had gone out into the kitchen at 8:00 so as to drink my hot cocoa while eating some fruit, while my father made me an omelet. Once I had finished eating, I had returned to my bedroom so as to take a shower, thus getting ready for the day ahead. After doing so, I had then organized two weeks worth of medication so as to bring with me to Mass. General Hospital. At 9:16 I then change the sheets on my bed, thus making it. At 9:30 I had given my grandmother a call. My mother then brought me to the Pierce House on her way to church. While visiting with my grandmother, we had played three games of cribbage. My mother arrived after mass, thus giving us both communion. At 12:00 we had arrived home. Once inside we had brought our luggage out to the car. At 12:15 My mother and I were on the road to scarbourough. We had stopped once to pick up a bite to eat for lunch, then continued our journey. We had arrived at my sister at 2:30. At 2:45 we were on the road to South Boston. Once my mother, sister and I arrived at a friends to spend the night before I go into the hospital, Mass. General tomorrow.
Saturday, May 21, 2016
Seeing my camp for the first time
My Saturday morning began at 9:00 a.m. by going out into the kitchen so as to drink my hot cocoa while eating my plate of fruit. After doing so, I then returned to my bedroom so as to make my bed. At 9:25 I then went mack out into the kitchen to have breakfast. At 9:45 I had returned to my bedroom so as to brush my teeth and shave. I then filled my pill containers so as to bring to Mass. General with me tomorrow. At 10:30 I then continued to pack for my stay at at Mass General. After doing so, I had called my grandmother. I then filled an extra pill container to bring with me. At 10:52 I then began to stretch. After doing so, I had taken a shower. At 11:30 my father had taken me to the shop so as to give me a haircut before going in the hospital. Who knows how I will be hooked up with wires and wrapping on my head. After my haircut we then left for home. At 12:50 I then ate some lunch. At 1:00 I had brushed my teeth before laying down to rest. I had slept for two hours before waking. My father then took me out to camp so that I could see my camp for the first time. It is a beauty. It is not completed yet but what is done is nice. Once I was finished admiring it, we then left for home. I had arrived home with my father at 4:12. I then went to my bedroom so as to blog my day before dinner.
Friday, May 20, 2016
Shopping at Reny's to pick up a few items of clothing to bring with me to Mass. General
My Friday morning began at 9;00 a.m. by going out into the kitchen so as to drink my hot cocoa while some fruit wit fruit dip. Once I had eaten my bowl of cereal and toasted english muffin, I then returned to my bedroom so as to brush my teeth. I then decided to cycle for fifteen minutes. At 10:05 I then called my grandmother. We spoke briefly, I then made my bed. At 10:17 I then stretched before speaking to my mother. She had called from work so as to let me know that she would be picking me up so as to go visti my grandmother while she did some shopping. At 10:20 I then had taken a shower thus getting ready to go. My mother had picked me up at 10:40. I had arrived ten minutes later. I then went into the Pierce House, I had asked my grandmother to go sit outside so that she could get some vitamine D into her body. We spoke for forty-five minutes before my mother had arrived to pick me up. At 11:45 my mother and I then went to Reny's to purchase some clothing items to bring with me while I am at Mass. General hospital next week. At 12:00 we then went to a farmers market to buy some homemade bread to bring to my sister. We had arrived home at 12:15. Upon doing so, I had helped my mother in with some groceries before eating some lunch. At 12:50 I then folded some clean laundry, thus putting it away. I then brushed my teeth before laying down to rest. I had slept from 1:00-4:00 before getting to take a shower. I then pulled up my blog and began to type. Once it was entered, I had eaten my dinner before calling it a day.
Thursday, May 19, 2016
Cleaning up the from yard
My Thursday morning began at 9:00 a.m. by going into the kitchen so as to eat some fruit with fruit dip along with my hot cocoa. After doing so, I had toasted half of an english muffin to go along with my bowl of cereal. Once I had finished eating, I had picked up the kitchen before returning to my bedroom so as to brush my teeth and to make my bed. I then grabbed my weights and began to work my upper body. At 10:25 I then stretched before calling my grandmother. At 10:40 I then cycled for twenty minutes before gathering my laundry so as to bring to the laundry room. At 11:20, I then had a bite to eat, I then brushed my teeth before going outside to pick up the yard. At 12:20 I had taken a shower before laying down to rest. I had slept from 12:45-3:45 before getting up. I had then gone out into the kitchen so as to dinner before returning to my computer to blog.
Wednesday, May 18, 2016
Working on memory recall during memory strategies group
My Wednesday morning began at 6:00 a.m. by calling United Wheelchair to see what time that I would be picked up. After doing so, I then made my bed. At 6:10 I then began to stretch. After doing so, I then strapped on my ankle weights, so as to work my legs. Once I had finished working out, I had taken my shower, thus getting ready for the day ahead. At 7:00 I had gone out into the kitchen so as to drink my hot cocoa while eating some fruit. I then had a bowl of cereal with a banana and toasted english muffin. At 7:17 I had brushed my teeth, I then sat down to wait for United to arrive. Upon my arrival to WestSide, once I had put my things in my locker, I then went to the conference room at 10:00 for memory strategies group. Today Michelle had us come up with a grocery list made from a recipe in which we like to eat. We then spoke of things that are good at working our memory. example: cribbage, doing math in your head, Cooking class uses senses, learn foreign language, Create word and picture, challenge taste buds, or directions to a place. Refine hand eye motor coordination skills, or even learn a new sport. At 10:45 we then played concentration. After the game we had to recall the ingredients At 11:00 I then had Brain Injury Education Group in the conference room. Today Michelle brought in Munchkins bought from the gift card given to us from the kids at our last presentation at Mountain Valley middle school. We then plained for our next presentation to be done with the scrub club at Franklin Memorial Hospital. We will be doing four groups of twelve students who ar interested in going into the medical field after graduation. We then made up a new outline for presentations. At 12:00 I then went to the dining area so as to eat my lunch. At 1:00 I then went back to the conference room for support group. At 2:00 Pete from United Wheelchair took me home. I had arrived home at 3:10. Upon doing so, I had called my grandmother before taking a shower. I then spoke to a friend on the phone before pulling up my blog at 4:40. Once it was entered, I had gone to eat my dinner. what a day.
Tuesday, May 17, 2016
working on my breathing with John while exercising
My Tuesday morning began at 6:00 a.m. by going out into the kitchen so as drink my hot cocoa while eating some fruit. I then had a bowl of hot cereal with a piece of toast. At 6:20 I then returned to my bedroom so as to brush my teeth and shave. At 7:00 I had then taken a shower thus getting ready for the rest of my day. Once I was ready I then grabbed my lunch and knapsack and out the door I went. United wheelchair had me at WestSide Neurorehab's door step at 9:45. I then put my lunch and clothing into my locker. I then went to the lobby so as to wait for John. He and I then went to the gym. John first had me on the lyptical. John then had me doing some weight exercises. In doing so, I had experienced breathing problems, do to my stroke. So John showed me when to breath in and release as I did the weight exercises. At 11:00 I then went to the arts and crafts room for expressive arts. Today Michelle had us working on our wind chymes. At 12;00 I had taken a shower before going into the dining area so as to eat my lunch. At 12:30 I then spoke to deb about my upcoming appointment at Mass General. I can not wait until it is over and my medication is working for me and preventing me from having any seizure symptoms what so ever. At 1:00 I then went to the conference room for Literature group. Today Laura had us reading Marly and Me. At 2:00 during my recreational therapy session, Tobie had me writing a little for my book. At 3:00 I then went to the conference room for creative writing. Laura first had us do a free write. We then worked on a writing assignment. At 4:00 Dan from United took me home. I had arrived home at 5:30. Once I was comfortable I had eaten my dinner before calling my grandmother, I then ate dinner before pulling up my blog.
Monday, May 16, 2016
doing a cognitive based activity during gardening group
My Monday morning began at 9:15 a.m. I had decided to sleep in a little extra longer doing to my later then usual appointment at WestSide. I had gone out into the kitchen so as to eat some fruit before returning to my bedroom to make my bed. I then went back out into the kitchen so as to drink my hot cocoa, while eating a bowl of cereal with a piece of toast. At 9:50 I had returned to my bedroom so as to brush my teeth and shave before putting some clean laundry away. At 10:01 I then began my workout. I first worked my upper body with my weight exercises. I then stretched. At 10:30 I then strapped on my ankle weights and then worked my legs. Once I had completed my workout, I had called my grandmother before working on my book. I did so for an hour before going back out into the kitchen so as to eat some lunch. I then brushed my teeth, thus grabbing my knapsack. United Wheelchair was outside waiting for me. I had arrived to WestSide at 1:30. Upon doing so, I had sat in the Lobby so as to start indoor gardening. The therapist was not there today which we normally work withl, so Laura had taken over the group. We had gone to the computer room so as to play hangman-a-roo on the computer. At 3:00 during my nursing time with Brenda, she had taken my blood pressure before talking about my trip to Mass General next Monday. At 3:30 United Wheelchair then took me home. I had arrived home at 4:38. Upon doing so, I had gone strait to my bedroom so as to take a shower before ating dinner. I then called my grandmother before pulling up my blog. I then called it a day.
Sunday, May 15, 2016
Playing cribbage with grandma
My Sunday morning began at 7:30 a.m. by g getting out of bed so as to stretch. After doing so, I then worked my upper body with my weights. At 8:00 I then watched Sunday Mass on television. At 9:00 I then took a shower thus getting ready to go visit my grandmother while my mother is at church. I am still unable to tollerate noise, thus triggering a seizure is the reason why I do not go to Church with my mother. Until Dr. Maus can figure how to treat my epilepsy, this is how life will have to be. At 9:11 I then ate breakfast. Once I had brushed my teeth my mother and I left the house. I had arrived at my grandmothers at 10:20. This week my grandmother wanted to play cribbage, and so we did. After three games, my mother arrived after mass, thus giving my grandmother and I communion. After visiting, My mother and I left my grandmothers. We had stopped at Hanaford. before arriving home. At 12:30 we soon arrived home. After eating lunch and brushing my teeth, I then lied down to rest. I had slept for three hours before getting up at 3:45. I had then spoke to a friend so as to pass the time away before dinner. Once I had finished eating, I then called my grandmother before pulling up my blog.
Saturday, May 14, 2016
Talking to technical support for apple I pad uasers
My Saturday morning began at 9:00 a.m. by going out into the kitchen so as to drink my hot cocoa while eating an assortment of fruit. After doing so, I then had some scrambled eggs and home fries for breakfast. Once I had finished eating, I had returned to my bedroom at 9:43 so as to change the sheets on my bed. Once my bed was made, I had brushed my teeth before dusting my bedroom. At 10:40 I had called my grandmother to see how her day was going. At 10:45 I then began to work out. I had first stretched. After doing so, I then continued with my weight routine, upper and lower. Then feeling tired, I had lied down to rest at 11:30. I had slept until 2:30 before getting up. I then went out into the kitchen to have a salad for lunch. At 2:50 I had called technical support so as to get my words with friends app on my I pad working again. In doing so, I had to download a a new version and delete the old. It is amazing now they have an I pad technical support number to call for Apple I pad users. At 4:30 I had taken a shower, thus getting comfortable for the evening before eating dinner.
Friday, May 13, 2016
a workout to put me to sleep
My Friday morning began on this thirteenth day of May at 9:00 a.m. I had gone out into the kitchen to fix myself a cup of cocoa to go along with the fruit that I eat. After doing so, I then sat down to enjoy. Once I had finished doing so, I had then fixed myself a bowl of cereal to go along with my piece of tost. Once I had finished eating, I then returned to my bedroom at 9:37 so as to brush my teeth and shave. after doing so, I had made my bed so as to neaten things before starting my workout. I had first had cycled for thirty minutes. At 10:30 I then returned to my bedroom so as to stretch. Once I had completed the routine, I then grabbed my weights and worked my arms. At 11:00 I had strapped on my ankel weights, so as to work my legs. After doing so, I then made myself some ice water before calling my grandmother. Once off the phone I had some lunch. I then brushed my teeth before laying down to rest. I had slept from 12:20-3:40. Not feeling all that well pryer to laying down, I am surprised I did not sleep longer. At 4:10 I had spoke to a friend briefly before sitting down to eat dinner. At 5:11 I had taken a shower before calling my grandmother. I then pulled up my blog so as to type of my day.
Thursday, May 12, 2016
People watching outside my grandmothers window
My Thursday morning began at 7:30 a.m. by going out into the kitchen so as to drink my hot cocoa while eating some fruit with fruit dip. After doing so, I then made myself a banana sandwich with peanut butter and honey between two pieces of toast. At 8:20 I then brushed my teeth. After doing so, I had cycled for thirty minutes. I then went back to my bedroom so as to make my bed and shave. At 9:07 I then grabbed my dumb bells and began to work my upper body. After doing so, I had then stretched before strapping on my ankle weights so as to work my legs. At 9:40 I had called my mother at work, She had let me know that she would be picking my up after work to bring me to my grandmothers, so that I could visit. At 9:42 I then called my grandmother Once off the phone, I then filled my pill containers up for the week. At 10:15 I then lied down to rest. I then went back to sleep until 11:52. Once I was up I had taken a shower before making myself a grilled cheese sandwich. At 12:36 I then brushed my teeth. After doing so, I had helped my mother in with the groceries. She then brought me to my grandmothers. We had just spent the time talking and enjoying the view outside her windows. My father had picked me up and I was soon home at 2:30. I then had snack while playing words with friends. At 4:36 I had put some laundry away before eating dinner. I then spoke to my grandmother before pulling up my blog.
Wednesday, May 11, 2016
Receiving a call from Mass. General
My Wednesday morning began 7:30 a.m. by going out into the kitchen so as eat an assortment fruit while drinking my hot cocoa. After doing so I had then toasted myself an english muffing to go along with my bowl of cereal. Once I had finished eating, I had then picked up the kitchen before then starting the dishwasher. I then returned to my bedroom so as to brush my teeth. I then cycled for thirty minutes before before putting a load of laundry into the dryer. Once I had made my bed, it was now 9:00 a.m. I then preceded with my day by working my arms by doing my weight exercises. After doing so, I then stretched. Once I was loosened up, I then I had given my grandmother a call. After a five minute conversation, At 9:35 I then made some ice. After doing so, I had shaved before laying down to rest for a half an hour. At 10:30 I then went back into the kitchen so as to empty the dishwasher. At 10:47 I then then went back to my bedroom so as to lay down. At 10:50 Mass. General called to let me know that there was a room open at an earlier appointment then mine already scheduled. It would have been nice to have taken it and this process over with, but where it involves other people getting me there and the time put in, for time off, I had declined. At 10:51 I then went back to bed to rest. At noon I then got up to have lunch. My mother arriving home from work had wakened me, so why not. At 12:30 I then brushed my teeth before laying back down to rest. I had slept once again for several hours before getting back up to take my shower at 3:17. After doing so, I had spoke to my grandmother before pulling up my blog.
Tuesday, May 10, 2016
No available rooms at Mass General. Appointment reschedules
My Tuesday morning began at 8:45 a.m. by going out into the kitchen so as to eat my fruit while drinking my hot cocoa. After doing so I then had two popovers for breakfast At 9:44 I had returned to my bedroom so as to brush my teeth. At 10:00 I then began to wrap up with my packing to go to the hospital. At 10:30 I then had taken a shower. At 19:45 my mother had taken me to my grandmothers so that I could visit. At 10:47 my mother had arrived so as to visit too after some things in town. As she was doing so, she had received a call from Mass. General. My appointment had been cancelled and moved to a later date. May 23 to be exact. Just when I was all pump and ready to go. I would have like to have gotten this over with. Oh well. My mother and I then visited with my grandmother from 11:00-11:30. We had arrived home at 11:48. I then called WestSide so as to let them know and to schedule me in for my appointments next week. At 12:00 I then unpacked a few things, but for the most part kept everything else all packed for the next appointment May 23. At 12:22 I then preceded with my weight exercises. After working my upper body, I then began to stretch. At 12:50 I then had a bite to eat, I then brushed my teeth before laying down to rest. I had slept from 1:00-4:30 before getting up. I then pulled up my blog and began to type of my day.
Monday, May 9, 2016
Getting ready for my trip to Mass. General.
My Monday morning began on this ninth day of May at 8:50 a.m. by going out into the kitchen so as to drink my hot cocoa while eating some fruit. After doing so, I had returned to my bedroom so as to make my bed. I then went back into the kitchen to have popovers fro breakfast. At 9:22 I began to charge my keyboard to my I pad for next weeks staying at Mass general. I was recently informed when I go there to stay at a friends house the night before going into the hospital that the availability for me having a room the next day is 50/50 chance. I might end up coming back to Maine and waiting another Week. At 9:30 I then shaved before fixing and organizing my travel bag with all my bathroom things. like toothbrush, toothpaste, comb, ect. I then continued to pack for my stay at Mass General Hospital. At 10:10 I then began to stretch. At 10:20 I then began to get ready to go get a haircut. Once I had washed my hair, I had called the pharmacy to order my prescriptions. At 10:45 My mother and I arrived at the shop. My father had given us both haircuts. At 12:00 my mother and I then left. At 12:12 we had arrived had Hanaford so as to pick up my medication, we then went to Mt. Blue Drug so as to pick up some vitamins. We had arrived home at 12:45. Once I had a cup of corn chowder for lunch, I then brushed my teeth before laying down to rest. I had slept from 1:00-4:30 before getting up. I then took a shower before eating dinner. After doing so, I had called my grandmother to see how her day went. I then pulled up my blog and began to type.
Sunday, May 8, 2016
Happy Mother's Day
My Sunday morning began at 7:45 a.m. by stretching and working my upper body with weights. At 8:00 a.m. I then watched Sunday Mass on television. After doing so, I had taken a shower thus getting ready for the day ahead. My sister then took me to visit with my grandmother on this mother's day. While there, my grandmother and I played several games of cribbage. My sister then arrived to visit and stayed for mother's day dinner with my grandmother. My mother soon arrived after mass so as to bring me home. Before leaving my mother had given my grandmother and I communion. We had arrived home at 12:00 noon. Upon doing so, I had put on something more comfortable before eating some lunch. I then brushed my teeth before sitting down to read some of the Sunday paper. At 1:30 I then lied down to sleep. I did so until 4:45 before waking. not feeling all that well this morning, I am not surprised at how long I had slept. Once I was up, I had eaten dinner before sitting down to blog at 6:00.
Saturday, May 7, 2016
A brief visit with my sister
My Saturday morning began at 9:00 A.M. by going out into the kitchen so as to drink my hot cocos while eating some fruit. After doing so, I ha enjoyed a plate full of french toast. Once I had my fill, I had returned to my bedroom so as to brush my teeth and shave. At 10:00 I then called my grandmother to see how her morning was going. At 10:15 I had taken the sheets off of my bed so as to put on clean. Once my bed was made, I started my workout. At 10:30 I had stretched all the muscles in my body. I then grabbed my weights so as to work my upper body. At 10:58 I then strapped on my ankel weights so as to work my legs. At 11:15 my sister had arrived. We visited briefly, before she and my father left for my uncles funeral. I then had to lay down. I had slept from 11:30-2:30 before getting up. Talk about being tired, and indeed that I was. I had then gone out into the kitchen so as to eat a salad. I then returned to my bedroom so as to put some clean laundry away. At 2:50 I then played some words with friends before taking a shower. I then went out into the kitchen at 4:00 so as to eat dinner. I then returned to my bedroo to enter my blog entry for the day before calling it a nigh.
Friday, May 6, 2016
A Brain Injury Education Presentation given today at Mt. Valley Middle School
My Friday morning began at 5:30 a.m. by going out into the kitchen so as eat some fruit while drinking my hot cocoa. After doing so, I then had a muffin in a half toasted with jam. Once I had finished eating, I then returned to my bedroom at 6:20 so as to brush my teeth and shave. Once I had made my bed, I then began my workout. At 6:37 I had began to stretch. Once I was loose, I had worked my upper body. Trying not to wear myself out, I had refused to strap on the ankle weights, ha ha. At 7:05 I then took my shower, thus getting ready to go give a presentation on the effects of brain injury at Mt. Valley Middle school. At 7:55 I had called my grandmother before leaving. United Wheelchair had picked me up at 8:30 a.m. I had arrived at the school in Mexico at 9:30. I was the first presenter there, so I had gone inside to check in and was brought to the class room in which we would be presenting in. While waiting for the rest of the group, I read my personal story to the class. As I was doing so the other group members had arrived. The other group members then read their personal story's. We then did some hands on activities which allows the class to experience first hand what it is like to walk in our shoes. Once the presentation was done, United Wheelchair then brought me home. I had arrived home at 12:00. Once I had a bowl of corn chowder, I had taken a shower before packing a little more for my stay at Mass. General next week. Lets hope this test I am going through will come up with some answers on how to treat my seizure disorder. It is a little scary when I think about it. Although I will be in a safe enviorment Having another grand mol seizure scares me to death. At 5:20 I then had dinner before calling my grandmother. I then pulled up my blog and began to type.
Thursday, May 5, 2016
Packing to go to Mass General
My Thursday morning began at 8:00 a.m. by going out into the kitchen so as to drink my hot cocoa while eating some fruit. I then toasted myself a muffin to go with my bowl of cereal. Once I had finished eating I had brushed my teeth. At 8:30 I then cycled for fifteen minutes before picking up the kitchen. At 8:50 I had returned to my bedroom so as to shave. At 9:00 I then began to stretch. At 9:20 I then preceded strengthening my upper body before strapping on my ankle weights so as to work my legs. At 9:55 I then spoke to my grandmother. At 10:00 I then began to pack to go to Mass. General Hospital. At 10:00 I then put clean clothing away before laying down to rest. I had slept two hours before turing on the news. I then went out into the kitchen so as to fix myself some lunch. My mother had arrived home from work at 12:30. Once I had brushed my teeth, I then called United Wheelchair to see what time I would be picked up tomorrow to go to the Brain Injury Education Presentation at Mt. Valley Middle School. I was told an 8:45 pick up so as to arrive at 10:00. I then continued to pack. At 2:15 I had called my grandmother before filling up my empty pill containers. I then played words with friends to pass the time. At 4:30 I then had a salad before taking my shower. I then had a bowl of corn chowder. At 5:30 I had called my grandmother to say good night. I then pulled up my blog and began to type.
Wednesday, May 4, 2016
Planning for Friday's presentation in Mexico
My Wednesday morning began at 5:30 a.m. by getting up to stretch. After doing so, I had shaved and taken my shower before going out into the kitchen. After having a some fruit with my hot cocoa, I then had a banana sandwich with peanut butter for breakfast. Once I haf finished eating, I had returned to my bedroom so as to brush my teeth. I then grabbed my knapsack and lunch and out the door I went. I had arrived at Westside for 9:15. I had put my things into my locker before meeting with Dan for a focus group with another client. The focus group happens every six months to determine what therapies you what like to do. Once I was finished choosing my new therapy's I then went to the conference room for memory group. Today Michelle spoke to us about Making to do lists and how strong emotions effect memory. At 11:00 during Brain Injury Education Group, we first reviewed last Fridays presentation, one I did not attend do to my transportation forgot to pick my up. We then all chose a gift given to us for doing the presentation last week at the University of Southern Maine. I was able to chose first seems transportation forgot to pick me up. Michelle and Deb then had us plan for this fridays presentation at a middle school in Mexico. Deb and I then went to the laundry room to put the shirts for the one handed activity in the dryer to get out some of the wrinkles while the others stayed back with Michelle to put packets of information together. At 12:00 I then went to the dining area so as to eat my lunch. I then took a shower before going back to the conference room for support group. Once we had shared about our week, I had grabbed my things and went home. I had arrived home at 3:00 And once I was settled, I had gone to bed. I had slept from 3:15-5:00 before getting up. I then called my grandmother before eating dinner. After doing so, I then returned to my bedroom to as to blog of my day.
Tuesday, May 3, 2016
Starting the book Marley and Me during literature group
My Tuesday morning began at 5:10 a.m. by working my upper body with weights. I then began to stretch. After doing so, I then strapped on my ankle weights and began to work my legs. Once I had completed my workout, I then took my shower, thus getting ready for the day ahead. At 6:10 I then made my way out into the kitchen so as to have a bowl of hot cereal with a piece of toast. At 6:30 I then brushed my teeth before gathering my knapsack and lunch, so as to bring to the door. At 7:00 I then called my grandmother so as to wish her a wonderful day. I then sat to wait for my ride. At 7:30 United had picked me up. It was Dan. He then went to pick up another patient along our journey to Lewiston. Upon our arrival I saw Sally in lobby. We said hi, I then had put my things into my locker before meeting with Brad. While doing so, I had experienced an aura. This disrupted my entire day. At 10:00 I then made my way to the gym for a P.T. session with Dan. I first had ridden the new step for thirty minute using what energy I had left. I then did some balancing exercises on the erix pad. At 11:00 I then made my way to the arts and crafts room for expressive arts. We had continued stringing beads to put on our wind chymes. At 12:00 I then took a shower before eating lunch. I then met with Deb. During our support session, We spoke about events going on in my home town. At 1:00 during Literature group today, Laura had us reading a new book, Marly and Me by John Grogan. I did some reading along with other clients. At 2:00 I showed Tonie the progress I had been making on my book. We then talked about publishing and other concerns with the book. At 3:00 during creative writing Laura had us first share our assignments before a ten minute free write. I then went home at 4:00. Upon my arrival home, I got myself comfortable before pulling up my blog.
Monday, May 2, 2016
What vegetables grow well with other vegetables?
My Monday morning began at 7:00 a.m. by getting up to make my bed. I then shaved before stretching. At 7:18 I then grabbed my dumb bells and began to work my upper body. At 7:18 I then strapped on my ankle weights so as to work my legs. At 7:34 I then took my shower, thus getting ready for the day ahead. At 7:50 I then went out into the kitchen so as to drink my hot cocoa while eating some fruit. I then had breakfast. At 8:10 I had returned to my bedroom so as to brush my teeth. After doing so, I had cleaned my bathroom before calling my grandmother. I then brought my knapsack and lunch to the door. At 9:00 I then sat to wait for my ride. At 9:30 United Wheelchair had arrived to bring me to WestSide. Upon my arrival I had brought my things to my locker before making my way over to the gym for my p.t. session. Jess first had me riding the olyptical. I did so for twenty minutes thus going 1.9 miles on level 3. I then went into the parallel bars so as to stand on the erix pad to work on my balance. Jess then had me tapping one foot on a ball, so as to rely all my weight on the other leg. At 12:00 I then went into the dining area to eat my lunch with others. After taking a shower, I then met with Joyce who was filling in for Brenda during my nursing session. Joyce and I played a memory game, thus trying to match two cards at a time. At 1:00 during my session with Deb, we worked on finding images so as to put in my book. I also showed her my latest chapter I had written. At 2:00 during gardening group Laura had us looking up what vegetables grow well with other vegetables. At 3:00 I then had my case management session with Piper. I first showed Piper my latest chapter before talking about gardening. At 3:15 United Wheelchair took me home. Along the way we had to bring a patient to Sumner, Which made for an interesting ride. I had arrived home at 4:51, thus pulling up my blog once inside. Once it was entered, I then ate dinner.
Sunday, May 1, 2016
Happy May Day
My first day of may began at 8:00 a.m. on this Sunday morning by watching Sunday Mass on television. Once the mass was over, I had stretched before taking my shower. I then went out into the kitchen at 9:45 so as to eat my breakfast. I then returned to my bedroom after an egg sandwich and some fruit so as to brush my teeth. My mother then took me to my grandmothers on her way to mass. I had arrived at the Pierce House at 10:05 a.m. My grandmother did not feel like a game of cribbage today, so we spent time talking and or watching the events going on outside on Main Street. My mother soon arrived at the Pierce House so after mass. She spent time visiting with her mother too before she had to go to lunch. We had arrived home at 11:54. I then put on something comfortable before having a grilled cheese sandwich for lunch. I then lied down to rest at 12:30. I had slept until 3:45 before I was woken by a phone call. It was my friend Greg. He and I spoke briefly, I then read the paper. After doing so, I had pulled up my blog, so as to type the day's events.
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